Update!

I have not been on for a while. My apologies. I have been extremely busy between my children , my classes ,and starting my online business, which i hope to post more about in the near future.

Gregory is maintaining good health despite a unsuccessful surgery. I had hoped that the surgery would be a end to his copious drooling. I feel slighted to say the least. The Doctors have a nice check while my poor son has a sore neck , the same drooling problem, and a possible new allergy. I was so sure after doing the research, talking to other parents, and professionals that the surgery would be a guaranteed success.

As they say, you win some you loose some. I am just thankful my son's health is back to normal.

I have also been working with Gregory's Doctor and the Dme company to try and get Gregory a new bed. He is growing everyday, and the bed he uses now is to small. He needs a hospital bed that can elevate his head. The elevation helps with the reflux as well as Gregory's secretions. I have been advocating for 2 weeks now I hope it pays off.

FYI to all the parents You are your child's best advocate! No one knows your child better than you do. You have the power to make a great change in your child's life. Despite what any professional may tell you! Do not be intimidated. Stay informed, stay involved ,and most importantly never give up!! A squeaky wheel, gets the grease!

God Bless,

Brittney

Happy President's Day

Myspace 2.0 layouts & Myspace Layouts

I just wanted to wish everyone a Happy President's Day! Our country has seen hard times in the past and present. I hope our President can learn from the mistakes made in the past, so change will be brought in the future.

Home Sweet Home

Well Gregory has made a 360˚ recovery. We were discharged from home on 2-12. My son continues to amaze. He went from a turn for the worse (ventilator) ,to a superb state. I did not know latex could cause such problems. The surgery seems to be a success. Greg still has minor secretions ( drool). I am just happy that we are not going through 15 towels in one day.


We will have to make a post op visit to an allergist. They will do a blood test to make sure Greg is in fact allergic to latex. They sent us home with an epipen (epinephrin) just in case.

I would like to send a special Thanks x2 to Denise on the Mott Children's PICU Floor. She gave Gregory outstanding care!

God is truly Good!

Post Surgery Mayhem!

Today was the day of Gregory's surgery. The surgery was suppose to be a "minimal procedure". Gregory's tentative surgery schedule was suppose to be: 1. Bilateral ear tube replacements. 2. Parotid duct ligation 3. Submandibular gland excision.

#2 ,and #3 are way's to control excess drooling. We arrived at 8:15 and surgery was scheduled for 9:30 am. Greg's operation didn't start until 10: 20 am. During the operation they said Gregory had an "allergic reaction" to the latex drain tubes. They said he had bronchial spasms. Since having this episode in the OR he is now intubated (ventilator) and a current patient in the PICU.


This surgery went from minimal to pure mayhem. Please keep gregory in your prayers as he recovers from this dramatic incident.

15 below is not that cold!

Just when you think all the cold and frigid temperatures have subsided, here comes the weather advisories. I guess this is what I should expect living in unpredictable Michigan. (The state where you can experience all four seasons in one day)

According to the News we are suppose to get scattered flurries and a wind chill below 15. They will not cancel Gregory's class until the wind chill gets below 17.
A two degree difference! That is ridiculous. I guess below 15 is not sufficiently cold for the school administration. The majority of the staff park their cars and enter the building. We on the other hand, the parents, have to park the car, unload the wheelchair, get our child, get their equipment or backpacks, and proceed towards the entrance.

Then when you enter the building you find out that the heat is only turned up 3 degrees higher than the temperature outdoors.

Excuse me for complaining, but some things just do not make any sense!

"Gregory" Picasso on Wheels

I have a weak spot for art. Even more so when the art is from one of my children. Gregory's Teacher, Mrs. Mary, was over today. (F.Y.I Gregory has class twice a week for an hour.) In light of Groundhog's day she decided to have Greg make a Ground Hog.

We placed the picture on the wall ( The wall of Fame) alongside Greg's other masterpieces. Here are a few of his other pieces of art.

Finding Resources can be Stressful!

Today I was in line at the Social Security Office. The lady sitting beside me started up a small conversation. She said she had a new baby a few months ago , and complications had arise. She was there to sign her child up for SSI. When she told me how they discharged her from the hospital with no place to go for resources I immediately began to empathize. I, too, went through the same dilemma.


I exchanged numbers with her and told her I would call with every Resource I have within our city. This ordeal inspired me to Blog today. To the left of the screen I have listed just a few of the many resources I have. I hope this can help other parent's ,relatives or caregivers who face similar situations.